Date Of Birth: November 1st, 2007

 Illness: Un-named Genetic Disorder (Wyatt is the 1st child in the world with it ) and Dandy-Walker Syndrome.

BIOGRAPHY

 When I was pregnant with my lil man everything was looking great until the 19 wk morphology scan. The ultrasound tech was acting a little strange and sent in another tech to double check her findings. I was than instructed to go up to the hospital where I had to have amnio done.

Two weeks later the results came back and my world was turned upside down. My lil man had a genetic disorder that no doctor had ever seen a baby with before (deletion 13q chromosome with additional 7p joined at the end of the deletion), also through follow up ultrasound it was discovered that his poor lil brain had not developed properly (he had DANDY-WALKER SYNDROME as well as partial absence of the corpus colosum, the part that joins both sides of your brain together). At that stage a doctor had come into the room and instructed me that my best option would be to terminate my 21 weeks gestated baby because he had (in her opinion) "no chance in living even 5 minutes after birth"!!!! I was floored, all I could do was cry although every fibre in my being just wanted to get up out of my chair and smack this doctor. I bluntly refused this doctors opinion and she called me a fool and walked out.

From then on I had weekly scans and was told to prepare his funeral NOT his nursery (which I did, I had everything for his funeral prepared including a specially ordered and made casket, songs, flowers and verses), I also had to explain to my then 3 yr old that his little brother won’t come home with us because baby Jesus has chosen him special to be his best friend and go live in heaven with him.

 13 days before his due date I was induced at 11 am and my contractions started at 12pm. I hoped and prayed, cried and 45 minutes later my lil man was born. I held my breath for what seemed like forever waiting for that all important 1st cry. Still unaware of the time (it seemed like an eternity I began to cry not know until the doctor said shhhhh) finally I heard it, the best sound in the world my baby boy was crying. We had him baptised and he was given a blessing (similar to the last rights) after a quick cuddle he was sent off to NICU where they ran test after test.

Finally after 10 days in NICU they sent him home in some doctors words "to live out his last days with us " (they were sending him home to pass away). Once Wyatt was home he thrived, we had nearly daily visits to the hospital so his doctors could watch what he was able to do, these soon turned into monthly, than half yearly visits. Wyatt's geneticist soon said it was apparent that Wyatt will show the world what he can do and no medical professional had ever seen his exact chromosomal arrangement. He currently has 5 books in the process of being written about him for the medical profession.

In March 2009, Wyatt had to have major brain surgery to insert a VP shunt, but sadly 3 days after being home on the 1st of April, Wyatt was rushed to hospital. He had developed a major Staph infection on his brain (the type of Staph was 1 that only grows on the skin, seems one of the original people in the first op hadn't scrubbed properly), he had to have a 2nd operation to remove the shunt. During this op he had lost more than half his blood supply and thanks to a generous blood donor he had a blood transfusion.

Wyatt spent the next 15 days in hospital receiving an intense antibiotic regiment. He was on Vencamiacin the stongest antibiotic there is (its the only one that could kill the Staph) the only down fall to the Venc is that it can damage your kidneys and it rots your teeth... (we now have to keep an eye on his output)....I was ecstatic he pulled threw the op yet again. 

He has beaten all expectations of all the doctors and he is doing great. He is the light in my life and he is proving that miracles do happen.

Written by Wyatt’s mum.