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Tamesia 004a

Tamesia B ~ ‘Dolls & Butterflies’
Tamesia's label

DATE OF BIRTH:  February 17th, 1993

 ILLNESS: Undiagnosed Neurological Condition, Non-verbal, Immobile, Epilepsy, Obstructive Sleep Apnoea.     
Tamesia's quilt

Tamesia’s Quilt Stitchers:

Australian

Anne~Lismore, Elaine~Raby, Hideko~Brazil, Julie~Beerwah,  Linde~Ambrose, Mandy~Tasmania,  Pearl~Gladstone,  Rene~Gladstone, Sam~Mt.Larcom, Tamara~Canberra.

International

 Audrey~Scotland, Becky~UK, Cristina~Italy, Debi~USA, Fee~Scotland, Jeneen~USA, Julia~USA, Marisa~Brazil,  Rosangela~Brazil,  Sharon~USA, Susan~Canada, Vicki~USA.  

     BIOGRAPHY      

Tamesia was born full term, and was tube fed from birth due to no suck reflex. She was always slow to feed, irritable, with breathholding episodes, diagnosed with gastro reflux & hiatus hernia. Gastrostomy button at age 3 ½, and then a fundoplication done soon after to stop reflux. 

At 18 months of age, an MRI was done and revealed Tamesia had an Arnold Chiari Type 1 malformation and an arachnoid cyst in left temporal lobe. Grommetts were inserted in her ears due to chronic middle ear infections. Tamesia had developed a squint in both eyes so surgery was done on the muscles of her eyes to correct it. 

She was diagnosed with epilepsy at the age of 6. A scoliosis had developed from the age of 3 and on her 12th birthday, rods were inserted down her spine to straighten the curve. During surgery there was nerve damage to her lower limbs and she now suffers with neuropathy pain. This then caused her feet to twist and surgery was recently done to both feet to fuse the bones so her feet will stay flat whilst sitting in her wheelchair. 

After both surgery procedures Tamesia became ill. This time developing pneumonia and becoming tachycardic. We have now been told ‘Meese’ has a heart condition called Wolff Parkinson White Syndrome which causes supraventricular tachycardia.

Written by Tamesia’s Mum