Kaitlyn  A ‘Ponies & Hearts’

‘Label stitched for the  quilt.’

         DATE OF BIRTH:  September 28th, 1999                           ILLNESS:  Neuroblastoma Stage IV

 BIOGRAPHY

Kaitlyn had a normal birth and delivery, she did however have two toes which were not seperated, her Nanna has the same toes but it was suggested it could mean she may have some form of disability.

Kaity grew fine but always walked with a limp, we tried to get answers as to why she walked so strange, then she started becoming ill a lot, slowly she got worse and after many visits to doctors I finally found a paedatrician who was listening to me and admitted her to hospital. It was the next day I found out she had a tumour filling her abdomen.

Kaitlyn is now six years old she was diagnosed with Neuroblastoma Stage IV (At Age 3 and a half) on June the 21st 2003, N-MYC Non-Amplified, unfavourable shimada. With a tumour filling her abdomen, which had spread to her neck, knees, hips and cells in her bone marrow lining, she has been placed on a tough treatment protocol (COG ANBL00P1), which consists of 5 rounds of high dose chemo, surgery to remove as much remaining tumour as possible, two rounds of mega chemo, with Double Stem cell Transplants/rescues, followed by 10 rounds of radiation and six months of Accutane. At diagnosis we were given the terrible odds of less than 20%.

Colleen ~ Kaitlyn’s mum

http://www.caringbridge.org/ne/kaitlyn/